When mental health services provoke complaints
The Crisis Team that wouldn't admit me or hospitalise me when compulsively suicidal ...
The junior psychiatrist who asked me, in front of my mum, why I didn't want to kill myself or her ...
The support worker who pulled out a knife on me and pretended to stab me with it ...
The worker who confided she had bulimia and she wanted to be "more than client/professional"..
The support worker who said I would rot in Islamic Hell forever if I were to "commit suicide" ...
The NHS mental health team whose phone lines have been down for up to 3 days at a time ...
and perhaps ultimately my suicide attempt in hospital whilst supposedly on suicide watch ...
These are just some reasons I've had to complain lately!
The SHO: "Why don't you want to kill yourself/your mum?"
I think this is a good place to start. Would you believe I never actually did complain formally about this intimidating and aggressive junior psychiatrist -- my NHS keyworker stayed behind after the incident and spoke to him and I understand he treated everybody else with schizophrenia the same. As a journalist of some 15 years, I often keep contemporaneous records of conversations with mental health professionals if they cause me undue distress -- here is the full "transcript":
Dr: “Are you feeling suicidal today?”
IB: “No.”
Dr: “Have you ever attempted to take your own life?”
IB: “Yes”
Dr: “Did you plan it first or did you just do it?”
IB: “I planned it.”
Dr: “Do you have any plans to kill yourself at the moment?”
IB: “No.”
Dr: “Do you want to kill someone?”
IB: “Pardon?”
Dr: “Do you want to kill somebody?”
IB: “No.”
Dr: “Why not?”
IB: “Because I don’t”.
Dr: (turning to my mum) “Do you want to kill your mum?”
IB: “No.”
Dr: “Why not?”
IB: “Because I don’t?”
Dr: “But why not?”
IB: “Because I love her and it’s wrong.”
Dr: “You are saying all the right things. We believe you now. We are safe.”
The Crisis Team which wouldn't admit or offer treatment
Next, and this time, believe me this was so serious we complained offcially to the local NHS Trust and it resulted in considerable changes to working practices and even staff ... I was in a desperately low state 3 years ago when I unexpectedly and without warning felt compulsions to kill myself. I rang the NHS Crisis Team. I got my mum to drive me up to the local psychiatric hospital with an overnight bag, packed, but they would not admit as I had, in their opinion "no intent". I was sent back home after a cup of tea and a chat.
The next day, the Crisis and Home Treatment team paid me a visit. I won't name the Trust or the staff, but the first words were as follows:
CPN: "Hi Ian. I haven't read your notes. I don't believe in reading peoples notes. Have you ever considered depot medication?" [injections of antipsychotics]
My family and I were just aghast at this -- I have been totally complaint with medication for the 8 years I've been diagnosed and have never missed more than one dose -- about maybe twice or three times in 8 years. I was suicidal AND compliant with medication and my acute paranoia was the result of stress and not medication non-compliance.
The CPN offered to admit, but when he got back to base, he discovered the nearest bed was two counties away and I wouldn't get there until 5.30am. This was 10pm. Understandably, we decided to tough out that night and resume negotiations with the Crisis Team the next day.
Then the CPN came back round. The whole Crisis Team then spent 5 and a half months refusing to admit me or offer me home treatment and my the care coordinator wouldn't help either. It wasn't for 5 months until the consultant psychiatrist changed my medication to a brang new drug that the relentless compulsions to die stopped -- Samaritans guidelines prevent me (quite rightly) from telling you the methods I considered but I was particularly attracted to certain things and by the end of those five months it was almost more than I could manage not to kill myself. I still get suicidal ideation now -- I've been going through it recently, on Valentine's Day, and since. I got the same NHS Crisis Team person last week -- he wouldn't event document my call on the e-CPA computer system and told me to ring another area's Crisis Team if I needed to speak again that night. I have made gentle noises to my NHS keyworker about it. She has had words ... the outcome -- it's now been documented!
The knife incident, phone lines down, and Islamic Hell
At a local mental health day centre I was just making a cup of tea one afternoon late last year when a support worker pulled out a knife on me in the kitchen and pretended to stab me with it. This is one of the most dangerous things any mental health worker could possibly do in a mental health setting. Had I misread the situation and reacted differently -- defensively -- or been someone else, this could easily have been a tragedy in the making.
I spoke in person to the local manager and made an informal complaint. The outcome -- the support worker doesn't work on the same days as I attend the service any more.
Meanwhile, back at my local NHS Trust, the telephone lines have been down so often over the past year -- sometimes completely down -- other times, the Crisis Team or all of the Community Mental Health Team and even the switchboard. I complained to Trust management several times by phone and email. Indeed initially I just rang up other Trust numbers and said: "Please can you let IT know that all your phone lines are down?". But the Trust denied it, repeatedly, and even wrote to me and emailed me denying it. Only once I emailed my MP to say I'd been suicidal and unable to contact the local NHS mental health team for 3 days did they finally admit there was a problem -- and invite me to send in "evidence". Outcome -- this one is ongoing. The problems with the phone lines persist.
And Islamic Hell. I am a liberal Christian -- if you don't know what one is, try Googling "John Shelby Spong" -- an American Liberal Bishop I once interviewed for Sunday programme when I was working for BBC Radio. I had a painful Roman Catholic upbringing, including experiences of abuse. I believe in Hell, but I do not want to believe that anyone who attempts suicide will end up there. So when a Muslim support worker preached his values to me and explained the full horror of Islamic Hell and damnation to me in an attempt to keep me safe ... what did I do? I kept it to myself. For about a year anyway. At that point, I became traumatised at the thought previous suicide attempts would mean I would suffer for eternity. It was only when a very kind young occupational therapist probed me about Catholic guilt that I realised I needed to complain. I did so informally via my NHS keyworker. Outcome -- words have been exchanged.
Finally, the suicide attempt in hospital "on suicide watch"
I don't want to go into detail about the worker who confided bulimia and that she wanted to be more than client and professional, as this still hurts, and I am still in the process of trying to return to the mental health service where she so severely broke boundaries, but I have to end this blog with the ultimate complaint ... and would you believe, to this day, despite my parents wanting to sue, I HAVE NOT COMPLAINED!!!
As a result of abrupt diazepam withdrawal 8 years ago (I'm still on a small dose) it became clear that the drug was masking suicidal compulsions and, as I have blogged previously, I spent a day preparing to die. I lived "the perfect day" -- and it was -- before making final preparations. At the last minute, a combination of love for my mum and ME/CFS made me reveal my plans to her ... and I agreed to go voluntarily/informally into hospital.
Sadly, the next day, whilst supposedly on suicide watch, I used something I had not had taken off me when admitted to attempt suicide. It was a bit innovative, and there's no way I'm going to risk anyone vulnerable copying it, so don't even wonder about what I did.
Nobody noticed. For two days. Then a student nurse came in and said: "Ian, did YOU do that?".
I said: "No!" authoritatively, scared.
She asked again, even more gently: "Ian, are you SURE you didn't do that?"
This time I just couldn't hold it in any longer. "YES, please help me."
The following day, when my mum visited the ward, I asked her how the staff had broken the news to her of my suicide attempt and how she was coping.
IT WAS THE FIRST SHE HAD HEARD ABOUT IT.
My mum broke bown in floods of tears. She was unconsolable. I was unconsolable. And ever since, every time I have felt suicidal, this moment has kept me safe. Yes, there have been times when I've wanted to die, even felt compelled to die, but to picture my mum and those floods of tears. I will never forget. And I know that if I were ever to succeed in taking my own life, she would never forget either.
Comments
Thanks for your kind support. I do, of course, want to protect other clients and service users, and that's why I have always brought things to the attention of people's line managers or supervisors. This has usually been at personal cost to me, in one case even being banned from a service (a local mental health charity affiliated to a national one).
So one has to be really careful in services not to alienate the people delivering care. For example, when I complained to my NHS Trust about the phone lines being down so frequently my care co-ordinator broke boundaries and asked me during a 1-1 to drop the complaint as she had been approached my Trust management. I felt unable to pursue it any further as it could affect our therapeutic relationship.
I'd welcome any feedback from anyone on this page with any suggestions as to how we can all report our concerns without it affecting our care.
I'm sorry I haven't replied until now -- I've been off work with a throat infection.
Take care, Ian
Thank you to both of you for your insights and kindness. I have to agree that complaining is a BIG risk -- you only need to search the newspaper archives where I live for evidence of vindictive treatment of mental health patients who have complained. Some people have had to take legal action after care was withdrawn.
Also couldn't agree more about lies -- but in agreeing here I have to say that my local NHS Trust have just written to my MP, who forwarded the letter to me, to say they have moved telephone providers and are replacing the entire telephone system.
However this is only due to an "anticipation of faults" said the CEO and she added that the phone lines had "never been down for a whole weekend". Now what cash-strapped mental health trust replaces its entire telephony system without there being an urgent need -- it's cutting beds so hard that it's boasting it'll have one of the lowest bed-to-client ratios in the country and saying this is because of its "brilliant community care".
If that "brilliant community care" includes leaving people suicidal for 5 months without admission or home treatment or even a support worker then I really don't know what poor community care is ...
But involving my MP got a result that even threatening to run a story identifying the Trust and the logged faults with its telephony didn't manage.
Please keep posting your comments! I've had a lot of private feedback too about this which is always welcome via my website.
PS the sore throat has travelled down to my chest now: thanks for asking though!
I understand that staff do lie and are defensive and practically the opposite of what they should be but does that mean we should just let them get away with it? Everybody has to be aware of their rights and fight for them, they can not just withdraw treatment. When I contacted my MP, he got in touch with the chief executive of [name of NHS trust removed] who then produced a letter from my psychiatrist which was forwarded to me. I was extremely annoyed by what the psychiatrist had said so wrote back to my MP to politely correct the bullshit that letter contained and it carried on further. They don't make it easy for you and you shouldn't give up at the first hurdle. If they even try to withdraw treatment, fight. If legal action is required, so be it. I understand that some people can't bring themselves to do that and that is their decision, but then don't expect it to get better. Receiving treatment you don't agree with or attending a group which makes you feel worse when you leave than when you arrived or feeling disrespected by those who are supposed to be helping you doesn't feel very good, and people just stop attending because they do not see the point. But that doesn't help them either. So you may as well open your mouth and say something, or write it or email or it or whatever. Just help yourself. People will do what they will though, that's just the way I see it.
I, too, suffer personality distress and have been suicidal in the past few days.
I no longer believe formal complaints as the answer as I have found I get even less support now than before I complained but what DOES seem to be effective is:
(a) Ask for a CPA Review. Bring an advocate along if you need to to ensure that your voice is heard. You can find an independent mental health advocate who will really listen to you and understand you and help you to put your case across to the NHS via http://www.actionforadvocacy.org.uk/map.jsp?region=UK
(b) There are now new and established therapies for personality distress in NICE Guidelines which the NHS should make available to you on request -- although they won't publicise such services and knowledge of them may be patchy, so do persevere, as you can be helped to minimise your suicidal and self-harm urges ...
DBT - Dialectical Behaviour Therapy -- Marsha Linehan's original therapy for PD focuses on giving you support when feeling suicidal or self-harming, helping to reduce self-harm quite dramatically and slowing down painful emotions with Mindfulness It's a proven therapy.
Psycho-Education - I did a group like this on personality distress last year and it MASSIVELY reduced how badly and how long I feel suicidal for and I have always come out the other side without making any attempts since. Learning about your condition is key to winning the battle -- as you say a big part of you wants to recover, tap into this and fight for your rights to treatment. I am now a firm believer that with the right help, personality distress can be tolerated and tamed.
MBT/CAT/TCs -- my blog on personality distress highlights how these three therapies, one of which is very new can radically improve distress tolerance over painful emotions and trauma and therapy with all three last at least 18 months at my local NHS Trust. It is a major source of support during that time, after which you would receive follow-up care.
Please DON'T allow the NHS to neglect you in this way. Contact your MP if need be (I have), ask to speak to the manager of the CMHT (I have), contact Emergence Plus http://www.emergenceplus.org.uk/ which is a peer run support for personality distress and most of all keep up that fighting spirit.
Should you find yourself unable to maintain your safety, dial 999 and ask for am ambulance to take you to A&E, or get a lift or taxi there. The NHS has a legal duty of care towards you and you have a right to be taken seriously and treated with respect and dignity and compassion and hope for the future.
Best of luck,
Ian